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Rare Diseases in Argentina
Putting Rare Diseases Patients First!® is based in the US, but has a global outreach through its Direct to...
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The Right to Try – Let’s Talk About the Good
The Right to Try law was signed by President Trump on 30 May 2018. Whilst there are bad and a just plain...
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The Right to Try – The Good, the Bad, and the Just Plain Ugly
The Right to Try law was signed into law by President Trump on 30 May 2018. It is appropriate...
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The Rare Diseases Patient — At the Center of it All
There are 7000 rare diseases affecting about 350 million patients around the world. There are only about 400 treatments...