Mrs. Agnes Nsofwa has joined our Scientific Advisors Group to help PRDPF! support patients with Sickle Cell Disease, and the parents of children with Sickle Cell Disease. She is the Founder and Executive Director of Australian Sickle Cell Advocacy Inc. (ASCA). She has been instrumental in raising the profile of Sickle Cell Disease in Australia, where she resides with her family. She showed tremendous courage when she was able to obtain a cure for her daughter who was born with Sickle Cell Disease. She was an accountant when she recognized the importance of a nursing qualification to enable her to care for her daughter. She trained and qualified as a nurse, and still works in that field, caring for the elderly. Putting Rare Diseases Patients First!(R) is delighted that Mrs. Nsofwa has agreed to join the Scientific Advisors Group.