Physician Liaison Volunteers

Physician Liaison Volunteers

Description

Physician Liaison Volunteers will represent PRDPF! in forging links with clinics and physician offices where patients with rare diseases are treated. They will be responsible for communicating the information that is available from the PRDPF! so that patients will be provided with this information.

These volunteers must have experience in treating patients with rare diseases. They must also be medically qualified, or a registered Pharmacist. The Putting Rare Diseases Patients First! organization provides a unique opportunity for those wanting to serve patients with rare diseases. Because it will be important to expend significant amounts of time training volunteers to represent PRDPF! we are requiring all volunteers that are formally selected for the roles to commit a minimum of 3 weeks of ten hours per week.

Reports to the President,Dr. Lorna Speid or VP of Patient Liaison

This is a volunteer position. Retired physicians are welcomed.

Physician Liaison Responsibilities:

• Sits on the Physician Liaison Committee
• Form links with physicians and clinics that treat patients with rare diseases
• Develop strategies for forging links and connections
• Speak at conferences
• Write papers and Blogs
• Forge links with government agencies on behalf of PRDPF!
• Provide input on the digital outreach strategy being developed and forged by
  the Marketing function

Outreach Responsibilities:

• Act as an ambassador for Putting Rare Diseases Patients First!
• Help raise awareness and advocate for Rare Diseases Patients First!
• Participate in media and public relations efforts when needed
• Protect the confidentiality of patients, their families and our strategic information

Liaisons should not:

• Give medical advice
• Feel compelled to assist patients and their families with personal problems
• Share confidential information

Geography:

UK (England, Scotland, Wales), France, Italy, Germany, Switzerland, Sweden, Norway,
Finland, Other countries in Europe, Canada

 Required Job Qualifications:

• Board certified physician or PharmD
• Have worked in a hospital or clinic
• Experience treating patients with rare diseases
• Be self motivated
• Have excellent written and oral communication skills.
• Excellent command of the English language
• Ability to empathize with patients and parents.
• Ability to take the initiative
• Self starter
• Integrity and good character are essential for this position
• Ability to make telephone calls to hospitals, patients, clinics, patient groups, that are
  serving the rare disease patient community.
• No conflict of interest