Pharmacy Student Patient Liaison Volunteers

Pharmacy Student Patient Liaison Volunteers

Description

Putting Rare Diseases Patients First! organization provides a unique opportunity for those wanting to serve patients with rare diseases. Because it will be important to expend significant amounts of time training volunteers to represent PRDPF! we are requiring all volunteers that are formally selected for the roles to commit a minimum of 3 weeks of ten hours per week.

Reports to the VP of Patient Liaison, or Dr. Lorna Speid 

These are volunteer positions :

several positions are available. Responsibilities will be assigned according to the geographical location of the volunteer

Pharmacy Student Patient Liaison Volunteer Responsibilities:

• To sits on the Patient Liaison Committee
• To make telephone calls to Patient Foundations in the resident country.
• Invite these foundations and patient support groups to Sponsor PRDPF! at no charge, for their patients to benefit
• Assist PRDPF! with outreach to patients and families affected by rare diseases
• Find out what the needs of the individual rare disease patient groups are in terms of new
  treatments and diagnostics.
• Facilitate the connection of patients and families with PRDPF! via email and phone
• Develop educational materials to send out to patient foundations based on guidance from Dr. Speid.

Outreach Responsibilities:

• Act as an ambassador for Putting Rare Diseases Patients First!
• Help raise awareness and advocate for Rare Diseases Patients First!
• Protect the confidentiality of patients, their families and our strategic information

Liaisons should not:

• Give medical advice
• Feel compelled to assist patients and their families with personal problems
• Share confidential information

Geography:

USA, UK (England, Scotland, Wales),France, Italy, Germany, Switzerland, Sweden, Norway, Finland, Other countries in Europe, Canada

Required Job Qualifications:

• Have worked in a hospital or community pharmacy for at least 6 weeks during previous university holidays
• Be self motivated
• Have excellent written and oral communication skills.
• Excellent command of the English language
• Ability to empathize with patients and parents.
• Ability to take the initiative
• Self starter
• Require the minimum of supervision
• Integrity and good character are essential for this position
• Ability to make telephone calls to hospitals, patients, clinics, patient groups, that are serving the rare disease patient community